The coordinating centre of the EAS Familial Hypercholesterolemia Study Collaboration (FHSC) has developed and manages a freely available global directory of lipid clinics and patient advocacy groups called "FindMyLipidCLinic.com". In developing FindMyLipidClinic.com, the developers, and their contributors from the EAS FHSC Global Network (providing clinics’ details) and the European FH Patient Network (FH Europe) (providing patients support groups’ details) aim to help dyslipidaemia patients and their relatives find specialist clinicians/clinics and peer-support organisations around the world.
Available Now, FindMyLipidClinic.com a Global Web-Based Directory of Lipid Clinics
This innovative tool not only allows its users to find specialists and support organisations around a location. It goes further by allowing its users to filter specialist clinics according to the services they offer (e.g. treating adults or children, genetic testing, Lp(a) testing, which imaging test, etc.). FindMyLipidClinic.com has been translated and made available in 29 languages to reach more patients worldwide.
FindMyLipidClinic.com is GDPR compliant, it does not store any users’ personal information, and is reasonably accessible to visually impaired people.
The developers invite all dyslipidaemia specialists wishing to list their clinic(s) on this directory to refer to the instructions available here (in English only).
Clinics specialising in genetic testing for FH
As part of an ongoing initiative with FHSC and national atherosclerosis societies to offer wider access to specialist services in the recognition and management of FH patients, the clinics listed below have agreed to act as referral centres for genetic testing for FH.
| Country | City | Institute | Contact |
|---|---|---|---|
| Argentina | Mar del Plata | Instituto Clínica Médica, Mar del Plata | Dr Pablo Corral |
| Australia | Perth | Lipid Disorders Clinic Cardometabolic Service Department of Cardiology Royal Perth Hospital | Prof Gerald Watts |
| Brazil | Sao Paulo | Portuguese: Unidade Clínica de Lípides, Instituto do Coração (InCor) Hospital das Clinicas da Faculdade de Medicina de USP English: Lipid Clinic, Heart Institute (InCor) University of Sao Paulo Medical School Hospital | Prof Raul Santos |
| Canada | Montreal | The McGill University Health Center | Prof Jaques Genest |
| Greece | Ioannina | University of Ioannina | Prof Evangelos Liberopoulos |
| Israel | Jerusalem | Hadassah Medical Center Lipid Clinic | Shoshi Shpitzen, MA |
| Italy | Milan | University of Milan and Multimedica IRCCS | Prof Alberico L. Catapano |
| Latvia | Riga | Paul Stradins Clinical University Hospital | Assoc. Prof. Gustavs Latkovskis |
| Netherlands | Amsterdam | DNA Expertise Center, Academic Medical Centre | Prof. Joep Defesche |
| Norway | Oslo | National Advisory Unit for FH//Unit for Cardiac and Cardiovascular Genetics (UCCG) at Oslo University Hospital | Dr Martin Proven Bogsrud |
| Oman | Muscat | Sultan Qaboos University Hospital | Prof Khalid Al Rasadi |
| Portugal | Lisbon | Instituto Nacional de Saúde Doutor Ricardo Jorge | Prof Mafalda Bourbon |
| Russia | Moscow | Russian Cardiology Research and Production Center (Complex) | Prof Marat V. Ezhov |
| Saudi Arabia | Makkah | Genetic and Molecular Medicine laboratory Umm Al-Qura University Faculty of Medicine Al-Abedia Campus | Prof Faisal Allaf |
| Saudi Arabia | Riyadh | Prince Sultan Cardiac Centre | Prof Fahad Alnouri |
| Singapore | Singapore | Khoo Teck Puat Hospital, Alexandra Health System | Assoc Prof Tavintharan Subramaniam |
| Slovenia | Ljubljana | University Children’s Hospital – UMC | Assoc Prof Urh Groselj |
| South Africa | Johannesburg | University of the Witwatersrand | Prof Frederick J. Raal |
| Spain | Madrid | Spanish Familial Hypercholesterolemia Foundation | Prof Pedro Mata |
| Sweden | Gothenburg | Lipid Clinic Department of Cardiology Sahlgrenska University Hospital | Prof Stefano Romeo |
| Sweden | Stockholm | Medicine Unit Endocrinology, Theme Inflammation and Ageing, Karolinska University Hospital | Prof Paolo Parini Dr Jonas Brinck |
| Taiwan | Taipei | National Taiwan University Hospital and National Taiwan University College of Medicine | Dr Ta-Chen Su |
| Turkey | Izmir | Ege University Faculty of Medicine | Prof Meral Kayikcioglu |
| Uruguay | Montevideo | Comisión Honoraria Para la Salud Cardiovascular | Dr Mario Stoll |
